Start off exercising,
Then, time to go pay those bills.
Wife wishes me a “great day”
I don’t know quite what to say…
So, I just swallow my big handful of pills.
Meds not quite working
legs are still jerking
when I get to my job.
Coworkers take it in stride.
I go away and hide.
But do they think I’m some kind of snob?
feel like napping,
dyskinesias1 starting to show.
Trying to speak,
But I feel SO weak
and bradykinesia2 is making me slow.
Eventually my body starts working
no longer hiding and lurking
it’s time to get things done!
NOW is the time for that meeting!
Hurry, “on- times3” are fleeting!
So energized, I practically run!
But sooner or later, (usually more sooner than late)
No matter how diligently I medicate,
my energy levels will wane.
Walking gets choppy,
talking gets sloppy
my body begins to complain.
Inconsistencies, at times amusing
create quite the stipulation
for the conditions of my employment
are not just for my enjoyment
Do I already need Deep Brain Stimulation (DBS)4?
On the way home,
These symptoms get tiring to explain.
Family needs a dad,
but I spent all the energy I had,
do I deserve to feel this shame?
On the couch,
why such a grouch?
Damn you Parkinson’s!
If people only had insight,
into how everything is such a fight,
“People with Parkinson’s must be a champions,
just to make it through the day!”
1: Dyskinesias – uncontrolled involuntary muscle movement
2: bradykinesia – slowness of movement. One of the cardinal symptoms of Parkinson’s
3: on-times – when medications are working well to control symptoms
4: Deep Brain Stimulation (DBS) – neurosurgical procedure that uses implanted electrodes and electrical stimulation to treat movement disorders.