Photo credit: Lidia Slominski
Champions
Early rising Start off exercising, Then, time to go pay those bills. Wife wishes me a “great day” I don’t know quite what to say… So, I just swallow my big handful of pills. Meds not quite working legs are still jerking when I get to my job. Coworkers take it in stride. I goContinue reading “Champions”
Brain Chemicals
I hope your summer is going well. Mine has been pretty good so far. My in-laws are staying with us for the summer helping to keep the boys occupied so my wife and I can continue working full time. My in-laws are eager to helpfully pitch-in around the house, which leaves extra time for myContinue reading “Brain Chemicals”
I see you….
For the ones that work 3 times harder to get 1/2 the work done. For the ones who live with the truth that they will be caught, no matter how hard they run. For the ones who endure (and overcome) physical challenges daily, big and small.But learn that it’s the challenges that no-one sees that presentContinue reading “I see you….”
Goodbye Agonists
When I initially vowed to reduce my agonists several weeks ago in response to some distressing obsessive behaviors, I resolved to get off them completely. When I took that first step, a reduction of a measly 2mg/day: I felt sick. I felt nauseous. I felt weird. I wasn’t so sure I would be able toContinue reading “Goodbye Agonists”
The Curse (and the gift) of the Agonist
I was wondering if I would ever get around to writing this post. Why? Because I’m taking less Dopamine Agonist (DA) to help control the symptoms of my Parkinson’s Disease. Huh? Ok let me explain. First off, I’m down to 2mg/day of the DA Nuepro, down from the 4mg/day I was taking a little overContinue reading “The Curse (and the gift) of the Agonist”
Evil (yet effective): Agonists
Parkinson’s has in a way has made me challenge the social norms of what we discuss openly. Though it can be hard on my ego to admit that I struggle with anxiety, apathy, and a host of other problems that are part of the Parkinson’s experience, I think it’s more important to get the wordContinue reading “Evil (yet effective): Agonists”
Always there for you
Sometimes I sit down and and wonder who you’ll be when you grow up and what kind of father I’ve been for you. What has it been like to have a Parky Dad? I try to be a good father. Praise you for good behavior, discipline you for bad. But I know I haven’t alwaysContinue reading “Always there for you”
In my head
What version of self do I get today? The one that is confident and self assured? Or the one that can’t walk and never knows what to say? I often wonder how much more I could accomplish. If i wasn’t waging a war with my mind with my body as an accomplice. I stumble IContinue reading “In my head”
The Adventures of Parky Superman
What if someone truly powerful got Parkinson’s? What would happen if Superman got Parkinson’s?
Parkinson’s Awareness
Someday in the very near future I’m going to have a “celebration of movement”. Yet I’d like to be careful how I cultivate perceptions of Parkinson’s by doing so. What I’ve chosen to do on that day is ride my mountain bike 10 miles to a climbing gym (within 1 hr). Deadlift 450lbs (there’s aContinue reading “Parkinson’s Awareness”
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