Photo credit: Lidia Slominski
Evil (yet effective): Agonists
Parkinson’s has in a way has made me challenge the social norms of what we discuss openly. Though it can be hard on my ego to admit that I struggle with anxiety, apathy, and a host of other problems that are part of the Parkinson’s experience, I think it’s more important to get the wordContinue reading “Evil (yet effective): Agonists”
Always there for you
Sometimes I sit down and and wonder who you’ll be when you grow up and what kind of father I’ve been for you. What has it been like to have a Parky Dad? I try to be a good father. Praise you for good behavior, discipline you for bad. But I know I haven’t alwaysContinue reading “Always there for you”
In my head
What version of self do I get today? The one that is confident and self assured? Or the one that can’t walk and never knows what to say? I often wonder how much more I could accomplish. If i wasn’t waging a war with my mind with my body as an accomplice. I stumble IContinue reading “In my head”
The Adventures of Parky Superman
What if someone truly powerful got Parkinson’s? What would happen if Superman got Parkinson’s?
Parkinson’s Awareness
Someday in the very near future I’m going to have a “celebration of movement”. Yet I’d like to be careful how I cultivate perceptions of Parkinson’s by doing so. What I’ve chosen to do on that day is ride my mountain bike 10 miles to a climbing gym (within 1 hr). Deadlift 450lbs (there’s aContinue reading “Parkinson’s Awareness”
Old Friends New Resolve
Like anything else in life, Parkinson’s get’s old. Having it can wear on you. Day in and day out, Parkinson’s this, Parkinson’s that. It’s always on my mind because….it’s basically always in my face, making me uncomfortable or in outright pain. Did you know that I recently forgot how to walk? Yep, I travelled forContinue reading “Old Friends New Resolve”
Oaxaca
Parkinson’s causes a host of troubling, difficult, and downright awful symptoms that worsen over time. Living well with Parkinson’s is dependent on a variety of factors. As the disease inevitably progresses some People with Parkinson’s (PwP) choose to live with a purpose. When five relative strangers from all over the country convened in Oaxaca MexicoContinue reading “Oaxaca”
Things That Disappoint Me About Humans
Yesterday afternoon I was enjoying a bike ride along the side of the road when a passerby in a truck decided he had a message for me. “Faggot!” he screamed as he roared past. I was of course jolted out of my revelry, nearly crashing the bike. Why did this gentlemen decide it would beContinue reading “Things That Disappoint Me About Humans”
Vacationing with Parkinson’s
I just got back from a weeklong vacation in Maui with my wife and two boys! We had a great time! You would never know it from looking at the great vacation pictures but, the trip was not without its challenges. Having Parkinson’s disease made it a bit extra challenging in several ways. Read onContinue reading “Vacationing with Parkinson’s”
Bad Days
I’ve tended to preferentially highlight my good days living with this shitty disease. I mean, who really wants to write about a bad day, or a negative experience or shudder…admit to some kind of weakness. Just why is that? Well, I think that we feel judged by the world. Sometimes, we’re our own biggest critics.Continue reading “Bad Days”
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Parky Perspective 